Cystic Fibrosis, Family

Joe’s medicine

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Joe has a cold at the moment so he has been put back on some more antibiotics. He has been on these antibiotics on and off for the whole of his life so far due to various viruses and infections. I thought I would just talk you through Joes medication so you know what he has to take, what it’s for and how often.

Flucloxacillin

This is a prophylactic antibiotic which means that it is not treating any current infection but is warding off potential infections. Joe has 2.5ml of this 4 times a day

Co-amoxicillin

This is an antibiotic that Joe has when he has a cold or virus or infection. He currently has 2.5ml of this 3 times a day and the course usually lasts 2 weeks at a time.

Creon micro

 

Creon micro gastro-resistant granules contain the active ingredient pancreatin, which is a mixture of digestive enzymes normally released by the pancreas to digest food. Pancreatin assists the digestion of fat, carbohydrates and proteins. The enzymes in Creon micro are extracted from pig pancreas glands. Joe has creon because his pancreas has little to no function due the the complications of cystic fibrosis. He has these granules before any food that contains fat, protein or carbohydrates so he can get nutrients from his food. Joes weight has to be carefully monitored to ensure he is gaining weight as it is so difficult for him to digest food.

Dalivit

DaliVit Multivitamin Drops contain the seven essential vitamins for the prevention of vitamin deficiency. It supplies the recommended amounts of these vitamins for normal health and growth in early childhood. Because Joe struggles to digest food he gets these vitamins daily to ensure he gets the right amount of vitamins that he can’t digest from his food. He has 0.6ml dose once a day.

Gaviscon infant

 

 

This is put into all of Joseph’s milk. It’s is a thickening agent that thickens his milk to treat his gastro-oesophageal reflux disease which is common babies with cystic fibrosis and means that the contents of his stomach often come back up his food pipe and causes a burning sensation. This is particularly dangerous to Joe as it means milk and food contents leave his stomach and can enter into his lungs, this is what caused his lung infection previously when he had his two week stay in hospital. It also makes him uncomfortable to eat and can lead to weight loss.

Mezzopram

This is omeprazole and treats heartburn and acid regurgitation in gastro-oesophageal reflux disease. Many adults take this medicine and it is not usually used for children under one but Joe uses 1/2 a tablet every day due to the severity of his gastro-oesophageal reflux (see Gaviscon)

Domperidone

This drug is  used  to prevent sickness. It is also used to help with serious cases of gastro-oesophageal reflux disease. Joe has 1.4ml of this 3 times daily.

Lactulose

Joe has 2.5ml of this twice a day. It softens his stools to prevent constipation. The side affects of creon mean that Joe can become easily constipated. Constipation is a common problem in sufferers of cystic fibrosis and can cause other complications.

Atrovent

This is Joe’s inhaler he has 2-4 times a day depending on how well he is breathing. This is used to help keep Joe’s airways open as they become blocked with sticky mucus and make it difficult for him to breathe.

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