If you get chance please listen to this radio clip on BBC Radio Four (listen from the 17 minute mark, the first section is about wine) about the CF Trust trying to raise awareness about the struggles people with CF have to go through to get simple things such as travel insurance. I was shocked. I knew vaguely that it would be difficult and expensive for us to get travel insurance for Joseph but because we have not really looked into it or gone abroad since Joe has been born I was not aware of how much of a problem this is.
In short BBC 4 talks to a family who planned to go on holiday to America together but Jamie the son who has cystic fibrosis was taken ill a few weeks before the trip. Despite being told by the hospital he was safe to fly abroad over 30 travel insurance companies refused to insure him and the two that did offer insurance wanted over £8000 to insure him for the trip. Obviously the family could not afford this and Jamie and his mom were left at home while the rest of his family went away. To make matters worse this could have been Jamie’s last holiday because his condition had deteriorated and he had been told that he has not got long to live.
It also highlights how insensitive the travel insurance companies are, they asked questions such as “is it a terminal illness?” which it is because there is no cure, but then asked for time and date of expected death?! How insensitive and ridiculous is that?! I was truly shocked by this information and quite upset. People with disabilities are discriminated against in the most unusual ways and I for one think its unfair.