Cystic Fibrosis, Family, Photos

RSV injections and bronchiolitis

Received a letter I knew was coming but was dreading for ages in the post the other day. Joseph has to return to hospital every month over winter to get RSV injections or Palivizumab as its otherwise known. You can read about palivizumab and last years injections in my previous post here.

The main reason he is having them again this year is to help prevent him catching Bronchiolitis. It is a common virus that affects small children and babies. Its caused by inflammations of the small airways in the lungs called bronchioles, which restricts the amount of air able to enter the lungs making it more difficult for the child to breathe.

Babies like Joe who have lung or heart conditions such as Cystic Fibrosis are at greater risk of developing Bronchiolitis. The RSV virus is responsible for 80% of cases of bronchiolitis in young children and babies.

Things to look out for include:

  • Fast breathing- shallow or quick breaths and not taking in much air
  • inability to feed
  • a distinctive rasping cough
  • a high temperature.

 

I am quite nervous about taking Joe for injections every month again this year as now he is a bit older he can remember bad experiences in hospital and has already developed quite a fear of doctors, nurses and clinical environments so I know its going to be a challenge. I don’t like taking him because I know it will hurt and he will be upset, it will be a stressful experience for us both, we have to travel quite a way to a different hospital than we are used to, I will have to hold him down while he has it done and added to this a week before each injection we have to go get him weighed at baby clinic ( we are having some problems with the health visiting service- last year they came to weigh joe at home as he is not supposed to hang around germ laden doctors waiting rooms….but that’s another rant for another day).

I know there are worse things in life than injections but its just another added stress and worry that I wish he didn’t have to go through.

But at the same time I am really grateful for these injections as last year he went through the whole winter without a cold so there’s silver linings to every cloud.

 

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