Weird things people say to parents of Children with Cystic Fibrosis- Cystic fibrosis awareness from www.rrandj.wordpress.com

The Breath Before- Cystic Fibrosis Awareness Video- Cystic fibrosis. No Joke.

“You remember the gig, the crowd and the song,

But not the breath you took before you sang along.

Laughing until you couldn’t breathe!

But of course your breath came back.

These are the breaths you take for granted.

Even the breath that brings new life.

This is the breath that was knocked out of you when they told you the news.

Cystic Fibrosis is the most common fatal genetic disease.

More than 2.5 million people in the UK carry a copy of the faulty gene without knowing it.

These are the breaths you no longer take for granted.

The breaths you will have to work for every single day of her life.

The breath that will leave her before she turns 30.

We are fighting to change this one breath at a time.

We will sing instead of gasping for air

We will be breathless with laughter and nothing else.

We might struggle to find the right words but not the breath to say them with.

Someday Our breath will last us a full lifetime.

This year take a breath for CF

Help us blow Cystic Fibrosis away- FOR GOOD.”

The above film was written and produced by comedy writer Tom Edge (creator of channel 4’s comedy series “Scrotal recall)  whose son has cystic Fibrosis, along with his partner and comedy agent Hannah Begbie to raise awareness of the genetic disease. It features a brief cameo by comedian Frank Skinner and was launched at the British Comedy Awards, where the Trust was 2014 charity partner and launched the cystic Fibrosis is no joke campaign.

If you would like to donate to the CF Trust this year please follow this link to their website.

Thank you.

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