Cystic Fibrosis, Family, Photos

Charity ball for Cancer research, Cystic fibrosis and 4Louis

img_5216This Saturday we attended an amazing event where Joe was a special guest and the only child in attendance!

The wonderful Becky and Mike Hill organised a fabulous Charity Wedding Ball to raise money for three very worthy charities: Cancer Research, The Cystic Fibrosis Trust and 4Louis.

The charity wedding Ball was amazing, there were incredible raffle prizes, auctions, sweet trolleys, photographers, a delicious meal, a few tears and lots of fancy frocks!

It was an amazing success and Becky and Mike managed to raise a jaw dropping £4, 498.61 for the three charities.

I have to say Rob and I were very overwhelmed by the kindness and generosity of Becky and Mike and all of you who attended and donated to the evening. Joe was spoilt rotten and thoroughly enjoyed spending the evening munching on sweets, clapping along to the speeches and dancing on the dance floor.

We met many wonderful people, many of whom have had great tragedy’s of their own or are survivors in their own personal battles, but were so kind and interested in our Joe and his challenges with Cystic Fibrosis.

It was lovely to see the bar and waiting staff walking around with CF Trust T-shirts on and to get the chance to spread awareness about CF.

We can’t express how grateful and touched we are for all of Becky and Mike’s efforts- it really is incredible to know that such love and generosity can come from great sadness, that people we don’t know that well can be so kind and give up their precious time and energy to raise money for a cause so close to us.

It was touching and heart warming to hear about the personal stories of others and to learn about the importance and great work of the other charities on the night,

Here is a little information about the three charities:

The Cancer Research Charity is very close to Becky and Mike’s heart as they have both tragically lost parents very recently to Cancer. There were not many people in attendance whose lives had not been touched by Cancer in some way, either through suffering themselves, watching a close friend or relative suffer or through losing special people to the disease.

Cancer Research UK are the world’s leading charity dedicated to beating cancer through research. They have saved millions of lives by discovering new ways to prevent, diagnose and treat cancer, and survival has doubled over the past 40 years.

Every day in the UK there are more than 400 people diagnosed with cancer that will survive the disease for more than 10 years thanks to research.

Cancer research UK fund research into more than 200 types of cancer, from the most common – such as breast, bowel, lung and prostate cancers – to rare types of tumour and children’s cancers, they support ground breaking science that benefits everyone.

4Louis is a charity in aid of bereaved parents who lose a child through still birth. Becky and Mike have friends and family members who have suffered the terrible tragedy and unbelievable sadness at losing a child. This wonderful charity provides hospitals across the U.K with memory boxes, so parents can capture as many memories as possible in the time they have with their child.

They provide memory boxes for stillbirth, neo-natal, infant and child loss. Each memory box contains;

  • A clay impression kit, to capture an impression of babies hands and feet.
  • Two teddies, one for baby and one for the family.
  • A glass angel in a presentation box
  • A candle,for a special occasion where the family may want to light it.
  • A card, so the family can write a poem or letter to baby.
  • A curl box, for a lock of babies hair,
  • An ink less wipe kit, to capture imprints of babies hands and feet.
  • A CD to keep babies photographs safe
  • A copy of ‘Guess How Much I Love You book
  • An SD Card
  • Forget me not seeds to plant
  • A balloon and postcard to heaven
  • An acknowledgement of life certificate

Cystic Fibrosis as you know is a charity that is at the heart of our family. One of Becky’s best friends is my sister in law Sarah who is an avid fundraiser for the Cystic Fibrosis Trust, and we were so touched when we heard that Becky had chosen The CF Trust as one of her three charities to support through this incredible event. Here is what was said in the very emotional speech’s about CF:

Cystic Fibrosis is a life-shortening genetic condition that slowly destroys the lungs and digestive system.

10,000 People in the UK today live with Cystic fibrosis, people like Joseph. Joe and other CF sufferers face a lifelong challenge, involving vast daily intakes of drugs, time-consuming physiotherapy, and isolation from others with the condition, just to stay healthy.

People with Cystic Fibrosis look perfectly healthy on the outside but in reality its a condition that affects so many parts of sufferers lives, and the lives of their families. It not only affects the lungs and digestive system but causes a huge ream of complications from diabetes to osteoporosis, liver failure to infertility, financial constraints to psychological problems. 1 in 25 of the UK population carries the faulty cystic fibrosis gene, most without knowing it. If two carriers have a child together there is a 1 in 4 chance the baby will be born with cystic fibrosis 3 babies are born each week with cystic fibrosis. 2 people die every week due to the condition. Only 50% of people with cystic fibrosis in the UK will live to celebrate their 40th birthday.

This is why the work of the Cystic Fibrosis Trust is so important. The CF Trust funds vital research, campaigns hard for people with CF, provides advice and support, and drives up medical standards so that people with CF, people like Joseph can one day hope to beat this condition.




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