Food, food, terrifying food Food is a touchy subject around here. This is a difficult post to write. But I think it needs to be written as there are other parents going through similar things with there children and they may find value in this post. As a parent, when you say your child has… Continue reading food food terrifying food #foodaversions #cysticfibrosis #GORD
Recently I have started listening to Podcasts, particularly when I go out for a walk in the evening to try and get a few more steps in on my Fitbit! One of my favourites has been Bringing Up Betty- a Podcast about special needs parenting, it's front woman is a lady called Sarah who has… Continue reading Making mealtimes easier
For today's gratitude Friday post I want to show gratitude for CF suffers, family members of people with CF and CF charities that put their stories out there on the internet so that other people who are affected by Cystic Fibrosis can gain hope, encouragement and support. So many times as a parent to a child… Continue reading GI problems, Cystic Fibrosis and Gratitude Friday
Hi Everyone and happy New Year! Hope you have all had a great festive period and are fresh and ready for a new year! (she says with a strained smile and twitching eye!) I shall have to do a post on our christmas shenanigans at some point but I am yet to have gone through all… Continue reading Update on Joe: cystic fibrosis, Gerd and dysphagia and Food anxiety
For the past few months it's been a bit of a negativity fest over here, but today I wanted to write a more positive post for a change! When you have a child with an illness that you have little control over it can become easy to forget all the good things and achievements they… Continue reading A Positive post!