Cystic Fibrosis, Family, Photos, Self

Joseph Graduates Nursery

The day has finally arrived, Joseph's last day at nursery school. We have the six weeks summer holiday and then my little baby boy is going to "big boy" school. I didn't know how I was going to feel on this day. Although in general Joseph has enjoyed his time at nursery we've had our… Continue reading Joseph Graduates Nursery

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Cystic Fibrosis, Self

Self Esteem and Advocacy

I often believe that every one secretly hates me. It happens when I take Joseph to nursery and I have to speak to one of the nursery staff. I have a ball of anxiety in my stomach because I believe they are all sneering at me behind my back or just waiting to whisper about… Continue reading Self Esteem and Advocacy

Cystic Fibrosis, Family

Update: Cystic Fibrosis, sunshine and nursery

2016 so far has not been the best year for us, although we have had some great moments and our two week Easter holiday was fantastic, health wise 2016 has been and is continuing to be a challenge. Recently we have had to face a number of challenges, Joseph has been in and out of… Continue reading Update: Cystic Fibrosis, sunshine and nursery

Cystic Fibrosis, Family, Food

Update on Joe #CF #foodanxiety

Hello Everyone, This year so far has been a bit of a roller-coaster, what with moving house, charity balls, birthday extravaganzas, the usual cystic fibrosis shenanigans, re-decorating etc etc etc we don't know whether we are coming or going round here some days! I have found it very stressful recently trying to manage all the… Continue reading Update on Joe #CF #foodanxiety

Cystic Fibrosis, Family, Self

Further update and gratitude Friday #cysticfibrosis

SO, just to update you further about Joe, he has been prescribed a 5 day course of a different type of antibiotic which will be reviewed after the 5 days. If he's still not better they will most likely continue with this antibiotic (which works as an anti-inflammatory) for 5 more days and if that… Continue reading Further update and gratitude Friday #cysticfibrosis

Cystic Fibrosis, Family, Food

Getting my CF toddler to try new foods

Getting your child to eat a varied diet is something that a lot of parents struggle with. It's high up on my list of parenting anxieties and concerns and is even more at the forefront of my mind because of Joe's Cystic Fibrosis and Pancreatic Insufficiency. (In short Joe has to have a high calorie… Continue reading Getting my CF toddler to try new foods

Family, Self

Building a positive relationship with yourself as a SAHM.

I am a full time SAHM (stay at home mom). This is a job I really enjoy, and I wouldn't have it any other way, it was my choice and my families choice. Being a SAHM has a lot of positives, I get to see my child grow up and be there for every stage… Continue reading Building a positive relationship with yourself as a SAHM.

Family, Photos

Easter holidays: Nanny and grandad, southport and “miniature locomotives!”

Over the Easter  holiday we had the pleasure of nanny and grandad coming to stay for Easter weekend and we got up to all sorts, visiting Southport, going on a carousel for the first time, eating chips, flying balloons and visiting the miniature railway village were just some highlights! It was a beautiful sunny day… Continue reading Easter holidays: Nanny and grandad, southport and “miniature locomotives!”

Joe cystic fibrosis- appropriate/comforting things to say to a parent of a child with cystic Fibrosis
Cystic Fibrosis, Family

Comforting/appropriate things to say to parents of children with Cystic Fibrosis

I have had a recent huge influx of interest in my previous post "weird things people say to parents of children with cystic fibrosis " that you can see here due to a very kind lady Sally Smith on twitter (who is the Social Media Account Manager & volunteer Media/Communication Officer for Cystic Fibrosis Trust.) reposting my blog… Continue reading Comforting/appropriate things to say to parents of children with Cystic Fibrosis